What is this organisation?

European Pulmonary Fibrosis Federation (EU-PFF) is an interest representative listed in the EU Joint Transparency Register under ID 098968923496-04. Entity form: Association.

What category is it registered under?

It is registered under the category "Non-governmental organisations, platforms and networks and similar".

Which country is it based in?

The organisation is based in Belgium, Overijse.

Where can I find its EU Transparency Register entry?

The full register entry — including lobby budget, EU funding received, accredited representatives and Commission meetings — is available on the EU Transparency Register under ID 098968923496-04.

EU TRANSPARENCY REGISTER · 098968923496-04 · Belgium

European Pulmonary Fibrosis Federation

EU-PFF

Stated objectives

-Promoting access to accurate and unbiased information on PF care - Advocating for the rights of PF patients and carers and involvement of patients in key healthcare decisions - Improving access to treatment and services, including non-phar…

As declared by the registrant. Truncated to 240 characters; full text on the upstream profile.

Official profile

The full record on the Joint Transparency Register carries financial information (lobby budget, EU funding received), the list of named accredited representatives, declared interests of those persons, and a history of meetings with Commission officials.

Full register entry ↗ Organisation website ↗

Registered

2016-09-20

Last updated

2025-11-05

Other NGO / platform in Belgium

Other registered organisations in Belgium

Frequently asked questions

What is this organisation?: European Pulmonary Fibrosis Federation (EU-PFF) is an interest representative listed in the EU Joint Transparency Register under ID 098968923496-04. Entity form: Association.
What category is it registered under?: It is registered under the category "Non-governmental organisations, platforms and networks and similar".
Which country is it based in?: The organisation is based in Belgium, Overijse.
What are its stated goals?: As declared by the registrant: -Promoting access to accurate and unbiased information on PF care - Advocating for the rights of PF patients and carers and involvement of patients in key healthcare decisions - Improving access to treatment and services, including non-phar…
Where can I find its EU Transparency Register entry?: The full register entry — including lobby budget, EU funding received, accredited representatives and Commission meetings — is available on the EU Transparency Register under ID 098968923496-04.

Source: EU Joint Transparency Register (Council / Commission / Parliament) · refreshed 2026-07-05 · Commission Reuse Decision 2011/833/EU