EU TRANSPARENCY REGISTER · 197007994063-31 · Germany
SMA Europe e.V.
SMAE
Category
NGO / platform
Country
Germany
Freiburg Im Breisgau
Entity form
Registered Association [Eingetragenes Verein - e.V.]
Stated objectives
SMA Europe is a non-profit umbrella organisation of spinal muscular atrophy (SMA) patient organisations who work together to bring earlier diagnosis, effective treatments and optimal care to everyone living with SMA (people living with SMA,…
As declared by the registrant. Truncated to 240 characters; full text on the upstream profile.
Official profile
The full record on the Joint Transparency Register carries financial information (lobby budget, EU funding received), the list of named accredited representatives, declared interests of those persons, and a history of meetings with Commission officials.
Registered
2024-10-10
Last updated
2025-10-02
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Frequently asked questions
- What is this organisation?
- SMA Europe e.V. (SMAE) is an interest representative listed in the EU Joint Transparency Register under ID 197007994063-31. Entity form: Registered Association [Eingetragenes Verein - e.V.].
- What category is it registered under?
- It is registered under the category "Non-governmental organisations, platforms and networks and similar".
- Which country is it based in?
- The organisation is based in Germany, Freiburg Im Breisgau.
- What are its stated goals?
- As declared by the registrant: SMA Europe is a non-profit umbrella organisation of spinal muscular atrophy (SMA) patient organisations who work together to bring earlier diagnosis, effective treatments and optimal care to everyone living with SMA (people living with SMA,…
- Where can I find its EU Transparency Register entry?
- The full register entry — including lobby budget, EU funding received, accredited representatives and Commission meetings — is available on the EU Transparency Register under ID 197007994063-31.
Source: EU Joint Transparency Register (Council / Commission / Parliament) · refreshed 2026-07-09 · Commission Reuse Decision 2011/833/EU