What is this organisation?

Rare Diseases Ireland (RDI) is an interest representative listed in the EU Joint Transparency Register under ID 309832251878-17. Entity form: Organisation.

What category is it registered under?

It is registered under the category "Non-governmental organisations, platforms and networks and similar".

Which country is it based in?

The organisation is based in Ireland, Dublin 7.

Where can I find its EU Transparency Register entry?

The full register entry — including lobby budget, EU funding received, accredited representatives and Commission meetings — is available on the EU Transparency Register under ID 309832251878-17.

EU TRANSPARENCY REGISTER · 309832251878-17 · Ireland

Rare Diseases Ireland

RDI

Stated objectives

Rare Diseases Ireland (RDI) is the national alliance for rare disease patient organisations in Ireland, working across all rare diseases to improve the lives of the estimated 300,000 people living with rare diseases in Ireland. We advocate …

As declared by the registrant. Truncated to 240 characters; full text on the upstream profile.

Official profile

The full record on the Joint Transparency Register carries financial information (lobby budget, EU funding received), the list of named accredited representatives, declared interests of those persons, and a history of meetings with Commission officials.

Full register entry ↗ Organisation website ↗

Registered

2023-11-08

Last updated

2026-04-30

Other NGO / platform in Ireland

Other registered organisations in Ireland

Frequently asked questions

What is this organisation?: Rare Diseases Ireland (RDI) is an interest representative listed in the EU Joint Transparency Register under ID 309832251878-17. Entity form: Organisation.
What category is it registered under?: It is registered under the category "Non-governmental organisations, platforms and networks and similar".
Which country is it based in?: The organisation is based in Ireland, Dublin 7.
What are its stated goals?: As declared by the registrant: Rare Diseases Ireland (RDI) is the national alliance for rare disease patient organisations in Ireland, working across all rare diseases to improve the lives of the estimated 300,000 people living with rare diseases in Ireland. We advocate …
Where can I find its EU Transparency Register entry?: The full register entry — including lobby budget, EU funding received, accredited representatives and Commission meetings — is available on the EU Transparency Register under ID 309832251878-17.

Source: EU Joint Transparency Register (Council / Commission / Parliament) · refreshed 2026-07-09 · Commission Reuse Decision 2011/833/EU