EU TRANSPARENCY REGISTER · 370223242487-93 · Netherlands
NF Patients United - Global Network of Neurofibromatosis Patient Organisations
NFPU
Category
NGO / platform
Country
Netherlands
Warnsveld
Entity form
non profit organization
Stated objectives
NF Patients United is an international umbrella organization of non profit patient organizations that advocate for people affected by Neurofibromatosis (Neurofibromatosis Type 1, Neurofibromatosis Type 2 and Schwannomatosis) and their famil…
As declared by the registrant. Truncated to 240 characters; full text on the upstream profile.
Official profile
The full record on the Joint Transparency Register carries financial information (lobby budget, EU funding received), the list of named accredited representatives, declared interests of those persons, and a history of meetings with Commission officials.
Registered
2021-05-05
Last updated
2025-12-22
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Frequently asked questions
- What is this organisation?
- NF Patients United - Global Network of Neurofibromatosis Patient Organisations (NFPU) is an interest representative listed in the EU Joint Transparency Register under ID 370223242487-93. Entity form: non profit organization.
- What category is it registered under?
- It is registered under the category "Non-governmental organisations, platforms and networks and similar".
- Which country is it based in?
- The organisation is based in Netherlands, Warnsveld.
- What are its stated goals?
- As declared by the registrant: NF Patients United is an international umbrella organization of non profit patient organizations that advocate for people affected by Neurofibromatosis (Neurofibromatosis Type 1, Neurofibromatosis Type 2 and Schwannomatosis) and their famil…
- Where can I find its EU Transparency Register entry?
- The full register entry — including lobby budget, EU funding received, accredited representatives and Commission meetings — is available on the EU Transparency Register under ID 370223242487-93.
Source: EU Joint Transparency Register (Council / Commission / Parliament) · refreshed 2026-07-08 · Commission Reuse Decision 2011/833/EU