What is this organisation?

International Patient Organisation for Primary Immunodeficiencies (IPOPI) is an interest representative listed in the EU Joint Transparency Register under ID 379847424451-15. Entity form: Non for profit organisation.

What category is it registered under?

It is registered under the category "Non-governmental organisations, platforms and networks and similar".

Which country is it based in?

The organisation is based in Belgium, Brussels.

Where can I find its EU Transparency Register entry?

The full register entry — including lobby budget, EU funding received, accredited representatives and Commission meetings — is available on the EU Transparency Register under ID 379847424451-15.

EU TRANSPARENCY REGISTER · 379847424451-15 · Belgium

International Patient Organisation for Primary Immunodeficiencies

IPOPI

Stated objectives

IPOPI's mission is to improving the quality of life for people with primary immunodeficiencies (PID) and associated conditions by raising awareness, promoting equitable access to early diagnosis, personalised treatment through global collab…

As declared by the registrant. Truncated to 240 characters; full text on the upstream profile.

Official profile

The full record on the Joint Transparency Register carries financial information (lobby budget, EU funding received), the list of named accredited representatives, declared interests of those persons, and a history of meetings with Commission officials.

Full register entry ↗ Organisation website ↗

Registered

2016-11-11

Last updated

2026-03-26

Other NGO / platform in Belgium

Other registered organisations in Belgium

Frequently asked questions

What is this organisation?: International Patient Organisation for Primary Immunodeficiencies (IPOPI) is an interest representative listed in the EU Joint Transparency Register under ID 379847424451-15. Entity form: Non for profit organisation.
What category is it registered under?: It is registered under the category "Non-governmental organisations, platforms and networks and similar".
Which country is it based in?: The organisation is based in Belgium, Brussels.
What are its stated goals?: As declared by the registrant: IPOPI's mission is to improving the quality of life for people with primary immunodeficiencies (PID) and associated conditions by raising awareness, promoting equitable access to early diagnosis, personalised treatment through global collab…
Where can I find its EU Transparency Register entry?: The full register entry — including lobby budget, EU funding received, accredited representatives and Commission meetings — is available on the EU Transparency Register under ID 379847424451-15.

Source: EU Joint Transparency Register (Council / Commission / Parliament) · refreshed 2026-07-07 · Commission Reuse Decision 2011/833/EU