What is this organisation?

Skeletal Dysplasias Alliance (SD Alliance) is an interest representative listed in the EU Joint Transparency Register under ID 426256050834-50. Entity form: Alianza, sin personalidad jurídica.

What category is it registered under?

It is registered under the category "Non-governmental organisations, platforms and networks and similar".

Which country is it based in?

The organisation is based in Belgium, Bruxelles.

Where can I find its EU Transparency Register entry?

The full register entry — including lobby budget, EU funding received, accredited representatives and Commission meetings — is available on the EU Transparency Register under ID 426256050834-50.

EU TRANSPARENCY REGISTER · 426256050834-50 · Belgium

Skeletal Dysplasias Alliance

SD Alliance

Stated objectives

Se trata de una Alianza formada por 8 grupos de 8 países europeos que representan y son punto de encuentro de personas con acondroplasia y displasias esqueléticas. La Alianza tiene como finalidad reforzar la unión de todas las personas con …

As declared by the registrant. Truncated to 240 characters; full text on the upstream profile.

Official profile

The full record on the Joint Transparency Register carries financial information (lobby budget, EU funding received), the list of named accredited representatives, declared interests of those persons, and a history of meetings with Commission officials.

Full register entry ↗ Organisation website ↗

Registered

2023-07-26

Last updated

2026-04-27

Other NGO / platform in Belgium

Other registered organisations in Belgium

Frequently asked questions

What is this organisation?: Skeletal Dysplasias Alliance (SD Alliance) is an interest representative listed in the EU Joint Transparency Register under ID 426256050834-50. Entity form: Alianza, sin personalidad jurídica.
What category is it registered under?: It is registered under the category "Non-governmental organisations, platforms and networks and similar".
Which country is it based in?: The organisation is based in Belgium, Bruxelles.
What are its stated goals?: As declared by the registrant: Se trata de una Alianza formada por 8 grupos de 8 países europeos que representan y son punto de encuentro de personas con acondroplasia y displasias esqueléticas. La Alianza tiene como finalidad reforzar la unión de todas las personas con …
Where can I find its EU Transparency Register entry?: The full register entry — including lobby budget, EU funding received, accredited representatives and Commission meetings — is available on the EU Transparency Register under ID 426256050834-50.

Source: EU Joint Transparency Register (Council / Commission / Parliament) · refreshed 2026-07-09 · Commission Reuse Decision 2011/833/EU