What is this organisation?

Cystic Fibrosis Registry of Ireland (CFRI) is an interest representative listed in the EU Joint Transparency Register under ID 442006797189-87. Entity form: Registered Irish company and registered charity.

What category is it registered under?

It is registered under the category "Non-governmental organisations, platforms and networks and similar".

Which country is it based in?

The organisation is based in Ireland, Dublin.

Where can I find its EU Transparency Register entry?

The full register entry — including lobby budget, EU funding received, accredited representatives and Commission meetings — is available on the EU Transparency Register under ID 442006797189-87.

EU TRANSPARENCY REGISTER · 442006797189-87 · Ireland

Cystic Fibrosis Registry of Ireland

CFRI

Stated objectives

To provide for the relief of sickness, disease and human suffering and to advance education by facilitating and undertaking research and providing accurate reports in order to monitor and improve treatments which will contribute to the impr…

As declared by the registrant. Truncated to 240 characters; full text on the upstream profile.

Official profile

The full record on the Joint Transparency Register carries financial information (lobby budget, EU funding received), the list of named accredited representatives, declared interests of those persons, and a history of meetings with Commission officials.

Full register entry ↗ Organisation website ↗

Registered

2025-03-03

Last updated

2026-02-26

Other NGO / platform in Ireland

Other registered organisations in Ireland

Frequently asked questions

What is this organisation?: Cystic Fibrosis Registry of Ireland (CFRI) is an interest representative listed in the EU Joint Transparency Register under ID 442006797189-87. Entity form: Registered Irish company and registered charity.
What category is it registered under?: It is registered under the category "Non-governmental organisations, platforms and networks and similar".
Which country is it based in?: The organisation is based in Ireland, Dublin.
What are its stated goals?: As declared by the registrant: To provide for the relief of sickness, disease and human suffering and to advance education by facilitating and undertaking research and providing accurate reports in order to monitor and improve treatments which will contribute to the impr…
Where can I find its EU Transparency Register entry?: The full register entry — including lobby budget, EU funding received, accredited representatives and Commission meetings — is available on the EU Transparency Register under ID 442006797189-87.

Source: EU Joint Transparency Register (Council / Commission / Parliament) · refreshed 2026-07-04 · Commission Reuse Decision 2011/833/EU