EU TRANSPARENCY REGISTER · 5450889102251-25 · Germany
European Society for Phenylketonuria and Allied Disorders Treated as Phenylketonuria
E.S.PKU
Category
NGO / platform
Country
Germany
Hiddenhausen
Entity form
Association
Stated objectives
Die E.S.PKU ist der Europäische Dachverband nationaler und regionaler Selbsthilfeorganisationen für Menschen mit Phenylketonurie und verwandten angeborenen Stoffwechselstörungen sowie ihren Angehörigen, die vergleichbare Ziele wie die E.S.P…
As declared by the registrant. Truncated to 240 characters; full text on the upstream profile.
Official profile
The full record on the Joint Transparency Register carries financial information (lobby budget, EU funding received), the list of named accredited representatives, declared interests of those persons, and a history of meetings with Commission officials.
Registered
2026-01-17
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Frequently asked questions
- What is this organisation?
- European Society for Phenylketonuria and Allied Disorders Treated as Phenylketonuria (E.S.PKU) is an interest representative listed in the EU Joint Transparency Register under ID 5450889102251-25. Entity form: Association.
- What category is it registered under?
- It is registered under the category "Non-governmental organisations, platforms and networks and similar".
- Which country is it based in?
- The organisation is based in Germany, Hiddenhausen.
- What are its stated goals?
- As declared by the registrant: Die E.S.PKU ist der Europäische Dachverband nationaler und regionaler Selbsthilfeorganisationen für Menschen mit Phenylketonurie und verwandten angeborenen Stoffwechselstörungen sowie ihren Angehörigen, die vergleichbare Ziele wie die E.S.P…
- Where can I find its EU Transparency Register entry?
- The full register entry — including lobby budget, EU funding received, accredited representatives and Commission meetings — is available on the EU Transparency Register under ID 5450889102251-25.
Source: EU Joint Transparency Register (Council / Commission / Parliament) · refreshed 2026-07-05 · Commission Reuse Decision 2011/833/EU