EU TRANSPARENCY REGISTER · 5693272100153-24 · Luxembourg
Rett Syndrome Europe
RSE
Category
NGO / platform
Country
Luxembourg
Niederkorn
Entity form
Not for Profit Patient Organisation
Stated objectives
Rett Syndrome Europe (RSE) is a non-profit, patient-focused European umbrella organisation representing people living with Rett syndrome and their families across Europe. Its primary focus is to advocate for the interests, needs, and rights…
As declared by the registrant. Truncated to 240 characters; full text on the upstream profile.
Official profile
The full record on the Joint Transparency Register carries financial information (lobby budget, EU funding received), the list of named accredited representatives, declared interests of those persons, and a history of meetings with Commission officials.
Registered
2025-08-27
Last updated
2026-03-01
Other NGO / platform in Luxembourg
- AJIL SCHIEREN
- ALAN asbl-Maladies Rares Luxembourg Kockelscheuer
- Ahead Bridel
- Alzheimer Europe Senningerberg
- Association Européenne de Écoles d'Hôtellerie et de Tourismes Diekirch
- CONFEDERATION EUROPEENNE DE VOLLEY-BALL Luxembourg
- Cluster Maritime Luxembourgeois asbl Luxembourg
- EuroExpert Asbl Luxembourg
Other registered organisations in Luxembourg
- 3A Advisory Professional consultancies
- AI Art Lab SARL-S Companies & groups
- AIG Europe S.A. Companies & groups
- APERAM SA Companies & groups
- Amazon Europe Core SARL Companies & groups
- ArcelorMittal Companies & groups
- Association Luxembourgeoise des Fonds d'Investissement Trade and business associations
- Association des Banques et Banquiers, Luxembourg Trade and business associations
Frequently asked questions
- What is this organisation?
- Rett Syndrome Europe (RSE) is an interest representative listed in the EU Joint Transparency Register under ID 5693272100153-24. Entity form: Not for Profit Patient Organisation.
- What category is it registered under?
- It is registered under the category "Non-governmental organisations, platforms and networks and similar".
- Which country is it based in?
- The organisation is based in Luxembourg, Niederkorn.
- What are its stated goals?
- As declared by the registrant: Rett Syndrome Europe (RSE) is a non-profit, patient-focused European umbrella organisation representing people living with Rett syndrome and their families across Europe. Its primary focus is to advocate for the interests, needs, and rights…
- Where can I find its EU Transparency Register entry?
- The full register entry — including lobby budget, EU funding received, accredited representatives and Commission meetings — is available on the EU Transparency Register under ID 5693272100153-24.
Source: EU Joint Transparency Register (Council / Commission / Parliament) · refreshed 2026-07-09 · Commission Reuse Decision 2011/833/EU