EU TRANSPARENCY REGISTER · 600735639422-31 · Italy

Fondazione Telethon ETS

FTELE

Category

NGO / platform

Country

Italy

Roma

Entity form

Fondazione

Stated objectives

Telethon Foundation is an Italian non-profit organization that has been supporting bio-medical research on rare and genetic diseases for more than 30 years. The vision of the Telethon Foundation is to translate research results into therapi…

As declared by the registrant. Truncated to 240 characters; full text on the upstream profile.

Official profile

The full record on the Joint Transparency Register carries financial information (lobby budget, EU funding received), the list of named accredited representatives, declared interests of those persons, and a history of meetings with Commission officials.

Registered

2020-09-15

Last updated

2025-09-22

Other NGO / platform in Italy

Other registered organisations in Italy

Frequently asked questions

What is this organisation?
Fondazione Telethon ETS (FTELE) is an interest representative listed in the EU Joint Transparency Register under ID 600735639422-31. Entity form: Fondazione.
What category is it registered under?
It is registered under the category "Non-governmental organisations, platforms and networks and similar".
Which country is it based in?
The organisation is based in Italy, Roma.
What are its stated goals?
As declared by the registrant: Telethon Foundation is an Italian non-profit organization that has been supporting bio-medical research on rare and genetic diseases for more than 30 years. The vision of the Telethon Foundation is to translate research results into therapi…
Where can I find its EU Transparency Register entry?
The full register entry — including lobby budget, EU funding received, accredited representatives and Commission meetings — is available on the EU Transparency Register under ID 600735639422-31.

Source: EU Joint Transparency Register (Council / Commission / Parliament) · refreshed 2026-07-06 · Commission Reuse Decision 2011/833/EU