EU TRANSPARENCY REGISTER · 826053491709-38 · Cyprus
PANCYPRIAN ASSOCIATION OF RARE GENETIC DISEASES UNIQUE SMILES
Category
NGO / platform
Country
Cyprus
NICOSIA
Entity form
NON PROFIT
Stated objectives
We are a group of people with rare diseases, parents, friends and health professionals who all shared from our own point of view, our strong concerns about the huge needs that people with rare diseases have to face. Needs such as an early d…
As declared by the registrant. Truncated to 240 characters; full text on the upstream profile.
Official profile
The full record on the Joint Transparency Register carries financial information (lobby budget, EU funding received), the list of named accredited representatives, declared interests of those persons, and a history of meetings with Commission officials.
Registered
2024-04-23
Last updated
2025-11-04
Other NGO / platform in Cyprus
- BirdLife Cyprus (Πτηνολογικός Σύνδεσμος Κύπρου) Nicosia
- Cyprus Anti-Cancer Society Nicosia
- Cyprus Energy Agency Lefkosia
- Cyprus Network for Corporate Sustainability and Responsibility Nicosia
- Cyprus Sustainable Tourism Initiative Λευκωσία
- European Office of Cyprus Nicosia
- European Wool Exchange Foundation NICOSIA
- HFC "Hope For Children" CRC Policy Center Nicosia
Other registered organisations in Cyprus
- 33East Limited Companies & groups
- AUGMENTIQ (EUROPE) Ltd Professional consultancies
- Association of Cyprus Banks Trade and business associations
- Aylo Freesites Ltd Companies & groups
- CHARLIE AIRLINES LTD Companies & groups
- CYPRUS BAR ASSOCIATION Trade union / professional assoc.
- CYPRUS CHAMBER OF COMMERCE AND INDUSTRY Trade and business associations
- CYPRUS PORTS AUTHORITY Other organisations, public or mixed entities
Frequently asked questions
- What is this organisation?
- PANCYPRIAN ASSOCIATION OF RARE GENETIC DISEASES UNIQUE SMILES is an interest representative listed in the EU Joint Transparency Register under ID 826053491709-38. Entity form: NON PROFIT.
- What category is it registered under?
- It is registered under the category "Non-governmental organisations, platforms and networks and similar".
- Which country is it based in?
- The organisation is based in Cyprus, NICOSIA.
- What are its stated goals?
- As declared by the registrant: We are a group of people with rare diseases, parents, friends and health professionals who all shared from our own point of view, our strong concerns about the huge needs that people with rare diseases have to face. Needs such as an early d…
- Where can I find its EU Transparency Register entry?
- The full register entry — including lobby budget, EU funding received, accredited representatives and Commission meetings — is available on the EU Transparency Register under ID 826053491709-38.
Source: EU Joint Transparency Register (Council / Commission / Parliament) · refreshed 2026-07-09 · Commission Reuse Decision 2011/833/EU