EU TRANSPARENCY REGISTER · 908525545154-49 · United Kingdom
The Ehlers-Danlos Society
Category
NGO / platform
Country
United Kingdom
London
Entity form
Non Profit Organisation
Stated objectives
The Ehlers-Danlos Society’s mission is dedicated to advancing and accelerating research and education in Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD). We support the development of effective and equitable EDS and…
As declared by the registrant. Truncated to 240 characters; full text on the upstream profile.
Official profile
The full record on the Joint Transparency Register carries financial information (lobby budget, EU funding received), the list of named accredited representatives, declared interests of those persons, and a history of meetings with Commission officials.
Registered
2022-01-13
Last updated
2026-04-27
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Frequently asked questions
- What is this organisation?
- The Ehlers-Danlos Society is an interest representative listed in the EU Joint Transparency Register under ID 908525545154-49. Entity form: Non Profit Organisation.
- What category is it registered under?
- It is registered under the category "Non-governmental organisations, platforms and networks and similar".
- Which country is it based in?
- The organisation is based in United Kingdom, London.
- What are its stated goals?
- As declared by the registrant: The Ehlers-Danlos Society’s mission is dedicated to advancing and accelerating research and education in Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD). We support the development of effective and equitable EDS and…
- Where can I find its EU Transparency Register entry?
- The full register entry — including lobby budget, EU funding received, accredited representatives and Commission meetings — is available on the EU Transparency Register under ID 908525545154-49.
Source: EU Joint Transparency Register (Council / Commission / Parliament) · refreshed 2026-07-11 · Commission Reuse Decision 2011/833/EU